OUR STORY
Photo: Sam and Max
We are a family of four living in Portland, Oregon. Life was good, really good, and then one day in 2017, our son, Max, was diagnosed with Anaplastic (Supratentorial) Ependymoma Grade 3 RELA positive. We have been through so much, and learned so much since then, that I wanted to share, and consolidate the most useful information I have found- for others. This website is that attempt.
Oh- and the panda logo. Max has a Panda stuffie from early on that he adores, and its name is Panda.
To read a short summary of Max’s (and our) story, click here.
If you want to reach out, for whatever reason, please email me.
Sam