Here are a few websites that are specific to Ependymoma.
Collaborative Ependymoma Research Network- Good information and Referrals. You want to talk with doctors who know Ependymoma very well.
Ependymoma Research Foundation- Very good summary of important details to learn about Ependymoma as well as summary or recent research/ trials
Facebook group 1: EpendyFamilies- Great place to ask questions and find answers, FAST
Facebook group 2: Pediatric Ependymoma- Another place to get answers fast.
When Max was first diagnosed, we were overwhelmed in so many ways, but we still needed some direction. Friends and family would ask what they could do for us, and very few just did things for us without asking. Both were thoughtful, but we usually didn’t know what we needed. We just needed a miracle. These should be short enough not o overwhelm you, but if you only have 15 minutes, read the Cheat Sheet.