When Max was diagnosed, we were not only overwhelmed- it was hard to know where to find the information we needed. So much great information is on the web, but it is also scattered and redundant. I’m making an attempt to collate helpful information from around the web (and offline) that is specific to your needs without overwhelming you. This is a work in progress, and I welcome your suggestions.
Newly Diagnosed Landing Page
Family Support
Surveys, Research and Data
Whether your child has been diagnosed the first time or has recurred, you’ll find a handful of documents and links here to get started.
This page has links to specific organizations, readings, financial aid, research, etc., that we can vouch for. I’d like to add more organizations that you can vouch for.
Surveys and Data